Today’s MRI went well by all accounts, and we finally got a chance to talk to genetics. They didn’t have a lot more to give us on the results of Rowan’s testing beyond what neurology shared with us on June 30, but they did get Amber and I set up with a blood test to check if we have the same mutations they’re seeing with Rowan. Those test have now been sent away.
With Rowan’s seizures seemingly managed by the current mix of meds (for now), they’re keeping the EEG off. The hair is BACK.
