April 23

A quick update on our stay. Rowan was extubated on Wednesday and was completely weaned from respiratory support by Friday morning. We left the PICU yesterday evening and we’re currently spending a couple of days down the hall in the hospital ward for monitoring. Assuming progress continues, we’re hoping to be home before the end of the weekend. When we do head home we’ll have an NG tube for feeding and meds, a temporary stand-in until G tube surgery in 4-6 weeks. Thanks all for your support and well-wishes!