Rowan’s EEG came off this morning so it’s that much less unwieldy to hold him at the bedside. He’s still on the BiPAP, but he’s slowly being weaned down in an effort to get him off of it completely, or at least onto something more comfortable like a High-Flow device. He was very fussy this […]
Rowan took a field trip downstairs to radiology this afternoon to get a clear picture of his insides. He’s still occasionally vomiting bile which can be a symptom of malrotation, where the intestines don’t end up in the right spot during development and which can require corrective surgery. Fortunately everything came back okay. This evening, […]
A fairly quiet day at the hospital. Rowan continues to spit up some of his vitamins despite the NJ tube, which is quite a gastrointestinal feat. He’s also been spitting up stomach bile, which after double checking doesn’t seem to indicate a digestive system blockage (which was a worry for a bit), but it’s really […]
Rowan had some trouble last evening and overnight with keeping down some of his medications and feeds, so they switched him to getting nutrients through an IV during the night. This morning they started him back on milk and he seemed to be keeping them down, but in an effort to prevent future spit-ups they […]
After an uneventful night last night, Rowan greeted his day nurse this morning with an episode of rapid oxygen desaturation and never really let up from there. Throughout the morning he continued to show signs of discomfort and low oxygen as the medical team kept tweaking and modifying things in an attempt to improve the […]
Another busy day for Rowan: the PICU team swapped out his CFM for an EEG, he had an ultrasound of his heart and another of his liver, had another chest x-ray, had another lumbar puncture, had some blood drawn for more testing, and got so annoyed with all the poking and prodding that at one […]
The Complicated Time – Chapter 2 Welcome back. After a wonderful, uncomplicated weekend at home, we ran into a couple more issues at the start of the week. Starting late in the day on Monday, Rowan’s appetite dropped significantly and he was spitting up any food we did manage to get in him (except, fortunately, […]
Home! Thanks to family and friends everywhere for their thoughts, vibes, prayers and support of all types, and a special thanks to Rowan’s team at McMaster: Dr. Patricia Lofiego, Dr. Hamdi Najjar, Dr. Tracy Lawrence-Black, Dr. Amit Mukerji, Dr. Dave Callan, Dr. Kevin Jones, Dr. Edward Pugh, our primary nurse Christina, and loads of other […]
A late update today after a busy day for Rowan including a hearing test and eye test (results showed nothing of concern for either) and a torso ultrasound (results should be back tomorrow). His parents has a busy day too, learning how to administer his vitamins and medications. A super exciting development today: Michael and […]
The CFM setup on Rowan’s head hasn’t really seemed to be helpful the last couple of days, as the sensors have a habit of loosening and falling off during feeds and handlings. I’ve dubbed it “Clearly Functionally Moot”*. His team replaced it with the EEG again for a half hour this afternoon just to make […]