June 8

Still no word on any seizures since ~6am Sunday. We’re hoping he gets in for his MRI at some point today. They’ve gradually been lowering some of his more sedative treatments, so he’s starting to be more responsive – wiggling toes, etc. Wiggling toes! Once he’s more responsive they’ll start giving him small doses of breast milk, starting at about a teaspoon over 3 hours and ramping it up depending on his tolerance. He’s got no labs planned for tomorrow – going to give him the day off. It’s been a busy few days for the little guy. Once the lumbar puncture results come back, assuming they’re negative, they’ll take him off antibiotics and basically rule out infection as the cause.

Amber and I still love getting to change his diapers. Who’d’ve thunk.